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June 30th, 2021

Caring for Adult Children With Special Needs

Mother with adult son in wheelchair

Being a caregiver to a family member or other loved one comes with unique considerations. In many cases, the care recipient and care provider live together, leading to a feeling (or reality) of being on-duty 24/7. 

While caring for an aging loved one can be anticipated as our family members get on in years, some families have unplanned circumstances that leave a child in need of care for the whole of his or her life. Tragedies such as an accident in childhood or condition at birth can inflict an individual with an incurable disabling condition. Maybe the adult child suffers from progressive conditions such as multiple sclerosis or Huntington’s disease or has developmental disabilities.

As the family caregiver ages, it will be more difficult to give the same level of care. Your energy level, strength, and other abilities will decline naturally over time as part of the aging process. Be careful if caregiving is taking a physical toll on your health; realize your physical limitations and ask for help. Call your local Agency on Aging to find out about respite programs.

It’s important to have conversations as a family to evaluate long-term care decisions for your adult child. Knowing your options before the need arises is the best way to prepare.

Resources

Family Caregiver Alliance
caregiver.org

This website is one of the most reliable and comprehensive sources of information for those providing care for loved ones. In addition to articles, videos, and webinars on just about every possible aspect of the caregiving journey, the site offers online support groups and strategies to connect with other families with similar experiences. 

Parents Helping Parents
php.com

PHP supports and educates families and the community to build bright futures for youth and adults with special needs. Peruse the site for educational and networking opportunities.


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